Alex

Alex

Author: Frank Deford

Publisher: Open Road Media

ISBN: 9781504007337

Category: Biography & Autobiography

Page: 141

View: 804

A father’s moving memoir of cystic fibrosis “captures a brave child’s legacy as well as the continuing fight against the genetic disease” (The New York Times). In 1971 a girl named Alex was born with cystic fibrosis, a degenerative genetic lung disease. Although health-care innovations have improved the life span of CF patients tremendously over the last four decades, the illness remains fatal. Given only two years to live by her doctors, the imaginative, excitable, and curious little girl battled through painful and frustrating physical-therapy sessions twice daily, as well as regular hospitalizations, bringing joy to the lives of everyone she touched. Despite her setbacks, brave Alex was determined to live life like a typical girl—going to school, playing with her friends, traveling with her family. Ultimately, however, she succumbed to the disease in 1980 at the age of eight. Award-winning author Frank Deford, celebrated primarily as a sportswriter, was also a budding novelist and biographer at the time of his daughter’s birth. Deford kept a journal of Alex’s courageous stand against the disease, documenting his family’s struggle to cope with and celebrate the daily fight she faced. This book is the result of that journal. Alex relives the events of those eight years: moments as heartwarming as when Alex recorded herself saying “I love you” so her brother could listen to her whenever he wanted, and as heartrending as the young girl’s tragic, dawning realization of her own very tenuous mortality, and her parents’ difficulty in trying to explain why. Though Alex is a sad story, it is also one of hope; her greatest wish was that someday a cure would be found. Deford has written a phenomenal memoir about an extraordinary little girl.
Alex
Language: en
Pages: 141
Authors: Frank Deford
Categories: Biography & Autobiography
Type: BOOK - Published: 2015-02-24 - Publisher: Open Road Media

A father’s moving memoir of cystic fibrosis “captures a brave child’s legacy as well as the continuing fight against the genetic disease” (The New York Times). In 1971 a girl named Alex was born with cystic fibrosis, a degenerative genetic lung disease. Although health-care innovations have improved the life span
What Forever Means After the Death of a Child
Language: en
Pages: 296
Authors: Kay Talbot
Categories: Psychology
Type: BOOK - Published: 2013-05-13 - Publisher: Routledge

List of Tables. List of Figures. Series Editor's Foreword. Preface. Prologue. Acknowledgements. What It Means to Be a Parent After a Child Had Died. The "Mothers Now Childless" Study: Research Design and Findings. When a Child Dies, Does Grieving Ever End? One Death - A Thousand Strands of Pain: Finding
Sixty Seconds
Language: en
Pages: 224
Authors: Phil Bolsta
Categories: Body, Mind & Spirit
Type: BOOK - Published: 2008-04-15 - Publisher: Simon and Schuster

Spiritual awakenings, whether quiet and subtle or dramatic and breathtaking, are deeply personal events. More than half of us have undergone a spiritual transformation, each unique and life-changing. We may only have a moment or two to act or we may have a few months to sort things out. We
Wo die wilden Kerle wohnen
Language: en
Pages: 40
Authors: Maurice Sendak
Categories: Fantasy fiction
Type: BOOK - Published: 1985 - Publisher:

Der kleine Max lässt sich ganz allein zum Land der wilden Kerle treiben. Er wird der Wildeste von allen und sie machen ihn zu ihrem König. (ab 4)
Covering the Uninsured Through the Eyes of a Child
Language: en
Pages: 190
Authors: United States, United States. Congress. House. Committee on Energy and Commerce. Subcommittee on Health
Categories: Child health insurance
Type: BOOK - Published: 2007 - Publisher:

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